Quality of life and self-esteem in Hemophilic children and adolescents
Samah Fawzy Mohammed;
Abstract
The QOL in hemophilic patients in Egypt needs strenuous efforts from hemophilia care-integrated teams of pediatric hematologists and psychiatrists in order to properly assess and improve QOL. In addition, among the factors significantly contributing to the emotional status of hemophilic child is the self esteem.
So, this study aimed to assess of quality of life and self esteem and to discover the relation of both to the clinical and therapeutic parameters in those children.
To achieve this target, 100 hemophilic children were included in the study. They had a mean age of 10.09 ± 4.44. They were subjected to careful history taking and thorough clinical examination. In addition, they were subjected to QOL and self esteem assessment.
Our study was shown that 48% of the studied children are obese. The most commonly encountered manifestation was target joint (75.0%) followed by gum bleeding (72%), circumcision bleeding (69.0%), epistaxis (54.0%), hemartherosis (50.0%) muscle hematoma (49.0%), dental bleeding (45%), and limited joint movement (33.0%).
In our study, 73% children were having on demand therapy while only 27% were on secondary prophylaxis.
Regarding the QOL, the study founded that it is clear that the studied children had generally poor quality of life domain. This is manifested by the mean total QOL score which was only 50.9. In our study, comparison between individual and total QOL scores in the studied age groups had revealed that children of the middle age (8-12 year) had significantly better QOL scores when compared with the other two groups. The relatively poor QOL scores in the present study is explained by the higher frequency of joint problems which had detrimental effects on the studied children physical health and other QOL domains.
Regarding the relation of quality of life to the demographic data, the study founded that no significant correlation between patients age and total QOL score. However, comparison between the studied age groups had shown that the age group of 8-12 years had better score when compared to the other two groups. Also, it was revealed that obese children had significantly worse QOL score when compared with no
So, this study aimed to assess of quality of life and self esteem and to discover the relation of both to the clinical and therapeutic parameters in those children.
To achieve this target, 100 hemophilic children were included in the study. They had a mean age of 10.09 ± 4.44. They were subjected to careful history taking and thorough clinical examination. In addition, they were subjected to QOL and self esteem assessment.
Our study was shown that 48% of the studied children are obese. The most commonly encountered manifestation was target joint (75.0%) followed by gum bleeding (72%), circumcision bleeding (69.0%), epistaxis (54.0%), hemartherosis (50.0%) muscle hematoma (49.0%), dental bleeding (45%), and limited joint movement (33.0%).
In our study, 73% children were having on demand therapy while only 27% were on secondary prophylaxis.
Regarding the QOL, the study founded that it is clear that the studied children had generally poor quality of life domain. This is manifested by the mean total QOL score which was only 50.9. In our study, comparison between individual and total QOL scores in the studied age groups had revealed that children of the middle age (8-12 year) had significantly better QOL scores when compared with the other two groups. The relatively poor QOL scores in the present study is explained by the higher frequency of joint problems which had detrimental effects on the studied children physical health and other QOL domains.
Regarding the relation of quality of life to the demographic data, the study founded that no significant correlation between patients age and total QOL score. However, comparison between the studied age groups had shown that the age group of 8-12 years had better score when compared to the other two groups. Also, it was revealed that obese children had significantly worse QOL score when compared with no
Other data
| Title | Quality of life and self-esteem in Hemophilic children and adolescents | Other Titles | جودة الحياة و تقدير الذات لدى الأطفال والمراهقين المصابين بالهيموفيليا | Authors | Samah Fawzy Mohammed | Issue Date | 2015 |
Attached Files
| File | Size | Format | |
|---|---|---|---|
| G10952.pdf | 795.65 kB | Adobe PDF | View/Open |
Similar Items from Core Recommender Database
Items in Ain Shams Scholar are protected by copyright, with all rights reserved, unless otherwise indicated.