Adult Congenital Heart Disease a Growing Population: A Registry of Adult Congenital Heart Disease in Ain Shams University

Abstract

SUMMARY O ur registry aimed at establishment of an electronic based data system to facilitate investigation of the prevalence and long-term outcome of specific congenital heart defects and their treatment, and to develop an efficient organisational structure for the improvement of healthcare for patients with congenital heart disease. Within a year 210 patients agreed to participate in the registry, 48.1 % were males, 51.9% were females, mean for age 29 years ranged from 16 to 69 years with 61% of patients aged between 16 till 30 years. ASD was the most common congenital lesion accounted for 27 % of the cases while TOF was the most common cyanotic lesion accounted for 7 % of the cases. The incidence of arrhythmia in our series was 12 % of total population, AF (2.4%) was the commonest arrhythmia (if PAC was not considered), followed by CHB (1.9 %), SVT (0.9%), VT (0.5%). Patients were followed up for 6-12 months, 42.9% were managed conservatively while 25.7 % underwent cardiac surgeries, while 31.4% underwent catheter interventions