Rehabilitation Program for Caregivers about Patients’ Post Autologous Bone Marrow Transplantation
louka, seham; Ferial Fouad; Hemat Abd Elmoneem,;
Abstract
Autologous stem cell transplant can be a curative therapy to restore normal hematopoiesis after myeloablative treatments in patients with malignancies. Aim: To evaluate the effect of rehabilitation program for caregivers about patients’ post autologous bone marrow transplantation Research Design: A quasi-experimental design was used. Setting: The study was conducted in Sheikh Zayed Specialized Hospital at Oncology Outpatient Clinic of Bone Marrow Transplantation Unit. Sample: A purposive sample comprised; a total number of 60 patients, their age ranged from 21 to 50 years, free from any other chronic disease and the caregivers are living with the patients in the same home. Tools: Two tools were used for data collection. First tool: An interviewing autologous bone marrow transplantation questionnaire for the patients and their caregivers was divided into five parts; Including: Socio-demographic data, knowledge of caregivers regarding autologous bone marrow transplant and side effect of chemotherapy, family caregivers’ practices according to their providing care related to post bone marrow transplantation, signs and symptoms, activities of daily living for patients and home environmental sanitation for the patients. Second tool: deals with physical examination assessment of the patients from head to toe. Results: 61.7% of patients aged 30- ˂40 years, and 68.3 % were female. Regarding the type of relationship with the patients, 48.3% were the mother, 58.3% of patients who underwent autologous bone marrow transplantation had a sanitary environment and there were highly statistically significant differences between caregivers’ knowledge and practices pre/post program. Conclusion: There were highly statistically significant differences between family caregivers' total knowledge, their practices, as well as their total caregivers’ knowledge, practices and patients’ independency level pre/post rehabilitation program. . Recommendations: Counseling for family caregivers of patients who underwent autologous bone marrow transplantation and carrying out rehabilitation program for the patients and their caregivers to be performed properly during the rehabilitation period at caner hospitals such as 57357 Hospital and The National Cancer Institute in Cairo.
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| Title | Rehabilitation Program for Caregivers about Patients’ Post Autologous Bone Marrow Transplantation | Authors | louka, seham ; Ferial Fouad ; Hemat Abd Elmoneem, | Keywords | Autologous bone marrow transplantation, family caregivers, rehabilitation program, sanitary environment, activities of daily living and instrumental daily living activities | Issue Date | Nov-2016 | Publisher | Ferial Fouad | Source | www.iosrjournals.org | Journal | IOSR Journal of Nursing and Health Science (IOSR-JNHS) | Series/Report no. | 5;6 | Description | Approximately 50 000 people undergo BMTs each year worldwide. With the move to more outpatient and home care, family caregivers are playing an ever-increasing role. However, there is little information regarding the needs and well-being of caregivers of individuals undergoing BMT. In Egypt, according to medical records of Sheikh Zayed Specialized Hospital, (2013). 390 cases of autologous transplant were carried out during the last 3 years in bone marrow transplantation unit. 75% of individuals receiving autologous transplants were between the ages of 21-50 years. The main source of support for patients is often their family as having access to this support which is important for patient outcomes. The community health nurse role includes assessing patients‟ needs to identify expectations of the patients and anticipate impact on family, providing psychosocial support and education during rehabilitation. Assessment and interventions are needed to support the sexual dysfunction and infertility as are major concern, monitoring the patient‟s condition with thorough physical assessments, assisting the patients and families to take responsibility for establishing, maintaining, and improving their health by adding to their knowledge and ability to influence health determinants. Specific information on how family can carry out these roles during rehabilitation encourages the adoption of health beliefs, attitudes, and behaviors that contribute to the overall health of the population. |
DOI | 10.9790/1959-0506021425, e-ISSN: 2320–1959.p- ISSN: 2320–1940 |
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