Quality of Nurses Care Provided for Children with Thalassemia to Meet Their Care Giver’s Satisfaction

Abstract

Thalassemia is a genetic blood disorder. Aim: The study aim to assess quality of nurse’s care provided for children with thalassemia to meet their care giver satisfaction. Research Design: The study was descriptive study design. Study sample: convenience sample for the nursing staff was 66 nurses and purposive sample for children and their care giver 222 child. Research setting: The study will be conducted on all nurses, children aged from 8 to 16years old accompany with care giver at thalassemia unit at Damanhur national medical institute El- Beheira governorate Tools: three tools were used, Tool I: included following parts: Assess socio-demographic characteristics related to the children with thalassemia, care givers and nurses , assess nurses' knowledge, attitude and performance and blood transfusion for children with thalassemia Tool II: medical record for child to assess medical history. Tool III: Assess care giver satisfaction regarding performance of the nurses, nurse communication skills, nurse taking care of the psychological state of caregivers of children with thalassemia. Result: the majority of the nurses had satisfactory knowledge, positive attitude and had high performance toward children undergoing thalassemia, less than half of care givers satisfied about delivered care nurse and more than one quadrant of them completely satisfied about delivered care nurse such as communication, physical and psychological assessment. Conclusion: There is statistical relationship between nurse over all knowledge and age, level of education and low and high performance of nurses and there is statistical significant relationship between overall performance of nurses and satisfaction of care giver of child with thalassemia. Recommendation: Developing and performing an in-service training program for nurses emphasizing the weak points to increase their knowledge and practices and continuously supervise this task.