Solicitude of Caregivers toward their Children with Guillain-Barre Syndrome

Abstract

Abstract Background: Guillain-Barré syndrome is the most common and most severe acute paralytic neuropathy that affects all aspects of a child's life. Aim of the study was to assess solicitude of caregivers toward their children with Guillain-Barre syndrome. Method: A descriptive research design was utilized in this study, A Convenient sample comprised of 44 caregivers with their children that have Guillain-Barre syndrome. This study was carried out at outpatient clinic in Children’s Hospital and physiotherapy unit affiliated of Ain Shams University Hospitals, Egypt. Three tools were used to conduct the study. Tool I: Pre-designed Questionnaire Format, to assess caregiver's knowledge about Guillain-Barre syndrome, Tool II: Caregiver's attitude toward children with Guillain-Barre syndrome rating scale. Tool III: Caregivers self- reported practices format. Results: the study revealed that studied caregivers their mean of age was 33.5±8.08 years, and 77% of them were female. Also, (72.7%) of the studied caregivers had unsatisfactory level of total knowledge about GBS, (59.1%) of them had positive attitude toward their children and (63.6%) of them had unsatisfactory level of total practice towards children with GBS. Conclusion: The majority of studied caregivers had unsatisfactory level of total knowledge about GBS, positive attitude toward their children having GBS, and most of them have unsatisfactory level of total practice towards children with GBS. There was significant positive correlation between total caregivers' knowledge, total practices, and their total attitude towards children with GBS. Recommendations: Providing training program for caregivers about GBS, Additional studies should be done for to further investigating the factors affecting caregivers’ knowledge and practice about GBS. Key Words: Caregiver's Solicitude, Gullain Barre Syndrome.