Quality of Life for Adolescent with Congenital Heart Diseases

Abstract

Adolescents with CHD face challenges in relation to sociological and disease-specific factors as well as in terms of the health services they require. In the sociological domain, they can have life experiences of disease, poverty, powerlessness, and racism. The disease-specific domain comes from the fact that these Adolescents have insufficient access to primary healthcare and lack information about their condition. Finally, adolescents with congenital heart disease often experience a lack of health communication and a positive experience is emphasized in the challenges of the health service domain (Haynes et al., 2020). An essential role of the CHN is the assessment of readiness of the adolescent to move out of the pediatric health care setting into adolescent health care. This needs to be a structured assessment of the knowledge that the adolescent needs to achieve independence in managing his or her congenital heart problem. This assessment can include a checklist of areas that the adolescent should know. The adolescent can then demonstrate his or her knowledge by explaining the condition of the heart with congenital heart diseases with the basic physiologic consequences of the disease (Skorton, 2016).